I began writing this in November of '05. It helped me deal with the negative feelings I had while I was pregnant and did not know what the outcome would be, only what the prognosis was.
"Luke Alexander is our son. He has a chromosome disorder that the doctors tell us is "incompatible with life". He grows within me every week, getting stronger as time goes by. He is tiny. I know that I do not feel "kicks" but only punches because he cannot move his legs. The punches usually always happen on the same side, the left side, of my body though I feel a flutter every once in a while on the other side.
Each morning before I rise, I wait to feel those flutters and punches before I roll out of bed. I am both comforted and disturbed by those movements. Comforted because I know that with that small amount of movement, he will make it through another day. Disturbed because he is allowed to live for what? Another day inside a stinky, dark sack?
He hiccups and I am honestly steadied. Sick babies don't hiccup do they? They feel the same as Olivia's. I schedule another sonogram because, even though I think I have accepted that we will not be granted a miracle, I secretly hope to be proved wrong. God is our rock. I do not comb Scripture for comfort, nor pray all day. I simply comfort myself knowing that God's plan is not my own and that I do not know what He knows. I try to find the gift He gives with the pain he bestows on us. Everything else seems cliche.
I am numbed and yet strengthened by grief. Everyday that passes teaches me something about life. Facing death in any form seems to have a way of affirming life. Steve and I seek comfort in loving each other. We find comfort in loving our 5 year old daughter, in her laughter, in her eyes, in her precious questions to God about Luke.
I read others' stories and get unexpected support from others who have lost a little one of their own. It's too common. My pain is mine but not unique. People who know and even those who don't, delight in putting their hands on my round belly. I am rocked by those touches
Tomorrow, I want to remain in bed all day long. Sleep long and hard and deep. The sleep of the depressed. I know I cannot and that soon enough I will be given time to grieve in full and I actually look forward to those days when no one expects me to be available to them, to be responsive, to be smiling. When everyone goes to work and I can lock the door behind them and just breathe. When I can allow myself to cry and nurse the migraines that follow. Twenty weeks is a really long time to know that the baby you carry will not live long. I look forward to the time of rest from worry and horrible, selfish, and ambiguous thoughts.
I have no doubt I will carry to term, though many parts of me wish that I could deliver early. However, that will mean a Christmas in the hospital and I don't want that for any of us. So I try to be patient and enjoy the pregnancy and his little life while we still feel him.
His life will not be a cliche."